Table 4 Community Conversation evaluation

1. The Community Conversation was informative

24 (83%)

29

2. The Community Conversation was useful

22 (76%)

29

3. The Community Conversation was participative

27 (96%)

28

4. Did the Community Conversation meet your expectations?

27 (90%)

30

5. Did the Community Conversation cover most areas that were important to you?

24 (80%)

30

6. Did the presentation on current research provide enough information?

21 (70%)

30

7. How well were your questions answered?

22 (73%)

30

8. Did you have an opportunity to put forward your ideas/priorities for research?

28 (93%)

30

Summary of responses to open-ended questions

9. Is there anything else you would like to add?

Doctors need to give correct information that ‘no alcohol is safe when pregnant’

What we said was valued

Need to provide information to high school students

More information on FASD research and issues surrounding diagnosis

Health professionals have different perspective to community members

Great to have access to up-to-date sharing of information and resources

Inspiring presentations by parents living with children with a FASD

10. The best thing about the Community Conversation was:

Very informative

Our voices and points of view were heard

Hearing different opinions

11. The worst thing about the Community Conversation was:

Questions repetitive and not deep enough

More time for discussion

Not enough pregnant women or Aboriginal women

12. Do you have any suggestions about how we might improve future Community Conversations?

Longer time

Questions sent to participants prior to Community Conversation

Different process to world café

More time for questions to speakers

13. Would you be interested in attending future Community Conversations on other research areas at the Telethon Institute?

Yes

26

No

1

Maybe

2