From: Public involvement in health research systems: a governance framework
Participation in review | ∙ Descriptions of processes used to involve publics in review of research projects [13, 17], including public observation of or participation in scientific peer-review processes, or separate review or ‘triage’ processes [46, 47] |
∙ Analysis of approaches to including publics in research review, including dedicated consumer review panels [53] or public peer reviewers [57,58,59] | |
∙ Analysis of involvement of publics in research review across research systems [5, 19, 64] | |
Criteria and calculus to allocate funds | ∙ Criteria to assess research projects |
◦ Using consumer-identified values and associated guidelines [46, 47] | |
◦ Using criteria relevant to community-based participatory research when under review [46, 51] | |
∙ Criteria to assess adequacy of public involvement | |
◦ Evidence of relevance of public partners and extant engagement [48] | |
◦ Evidence of adequacy of time and funding allocated to public involvement [6, 44] | |
∙ Calculus to assess evidence of public involvement | |
◦ Varied approaches, e.g. mandatory minimums, weighted criteria or un-weighted criteria [5] | |
◦ Concern that prevailing evaluative logics render public involvement a secondary consideration [19] | |
Funding flows | ∙ Mechanisms to support researchers to pursue public involvement |
◦ Involvement as condition of funding [54] | |
◦ Encourage students/junior researchers through leaves or fellowships [61, 65] | |
∙ Mechanisms to enable publics to be involved | |
◦ Publics face financial challenges that impede involvement, especially communities and civil society organisations [38, 41, 42, 51, 66] | |
◦ Advance planning by researchers to anticipate funding needs, such as training, and expenses incurred by publics, such as travel costs, child care costs, sitting fees for participation [17, 43, 52, 56] | |
◦ Challenges in flowing funds to public partners [17, 44, 45] | |
◦ Funding arrangements that support public involvement independently of embedded public involvement activities within specific grants [19] | |
◦ Funding arrangements where publics are the ‘institution paid’ with support mechanisms to increase capacity for community partners to be successful in securing funds [46, 65] |