From: Mental health research priorities in Australia: a consumer and carer agenda
Research topic | Topic area | Priority ranking (percentage important ratings) | ||
---|---|---|---|---|
Consumer | Carer | Consumer/Carer | ||
How to implement internationally recognised models of peer support in Australia | Peer to Peer | 1 (94) | 24 (70) | 72.5 (44) |
Over-representation of mental illness in the justice system | Justice | 2 (88) | 1.5 (100) | 11 (78) |
How is psychosocial disability defined in the NDIS, and how will it impact consumers and carers in Australia? | National Disability Insurance Scheme | 4.5 (88) | 9 (80) | 15.5 (76) |
How does the use of language include/exclude individuals? | Language and Communication | 4.5 (88) | 69 (44) | 55.5 (56) |
Consumersā experiences of peer-to-peer services | Peer to Peer | 4.5 (88) | 39 (60) | 64.5 (50) |
Social inclusion | Other | 4.5 (88) | 15.5 (78) | 44.5 (60) |
How participation works in practice (tokenism vs. real involvement) | Consumer and Carer Involvement | 7.5 (85) | 24 (70) | 11 (78) |
What is helpful in recovery-oriented services? | Experiences of Care | 7.5 (85) | 9 (80) | 32 (65) |
Peer-led services ā What are the gaps? (e.g. support groups) | Peer to Peer | 10 (84) | 46.5 (56) | 55.5 (56) |
How to recruit and train peer workers ā What is going on, and where? Where is it embedded? How are they being supported? | Peer to Peer | 10 (84) | 39 (60) | 55.5 (56) |
Mental health in LGBTIQ+ populations | Other | 10 (84) | 46.5 (56) | 38.5 (63) |
How is the consumer and carer voice integrated into policy and services? How are their contributions valued, and what indicators exist to demonstrate how their voice is used? | Services | 12 (84) | 52.5 (55) | 21.5 (71) |
How do we expand who is involved? (e.g. young people) | Consumer and Carer Involvement | 13 (82) | 15.5 (78) | 64.5 (50) |
Is medication what we want? Side effects, health impacts, alternatives, efficacy, cost-effectiveness | Medication | 14 (79) | 34 (64) | 59 (55) |
Stigma by health providers (mental health and others) ā What do they believe and how does it impact? | Stigma | 15.5 (79) | 24 (70) | 5 (83) |
Are consumers being consulted about their experiences of care? | Experiences of Care | 15.5 (79) | 24 (70) | 21.5 (71) |
Impact of service delivery on consumers and carers ā What contributes to recovery? | Services | 17 (78) | 58 (50) | 7 (81) |
What programmes/supports can be devised for reaching individuals that are outside of NDIS scope? | National Disability Insurance Scheme | 20.5 (78) | 9 (80) | 15.5 (76) |
Peer support in public mental health system | Peer to Peer | 20.5 (78) | 46.5 (56) | 24.5 (69) |
Accommodation | Other | 20.5 (78) | 46.5 (56) | 25.5 (69) |
Employment | Other | 20.5 (78) | 5 (89) | 7 (81) |
Support in education settings | Other | 20.5 (78) | 15.5 (78) | 77 (38) |
Culturally and linguistically diverse perspectives within mainstream mental health system | Other | 20.5 (78) | 69 (44) | 32 (65) |
How do individuals adapt to changes in medication that impact lifestyle and quality of life? | Medication | 24 (77) | 52.5 (55) | 38.5 (63) |
Training of psychologists ā How can consumer perspectives be incorporated? | Health Professionals | 26.5 (76) | 62.5 (45) | 44 .5 (60) |
Where do physical health concerns fit into health services when you have mental health problems as a main focus? | Comorbidity and Physical Health | 26.5 (76) | 39 (60) | 11 (78) |
Discrimination | Justice | 26.5 (76) | 15.5 (78) | 27.5 (67) |
How have people who have experienced trauma been cared for? | Experiences of Care | 26.5 (76) | 39 (60) | 21.5 (71) |
Trauma informed care ā Why is it important, and how is it integrated into service delivery? | Services | 29.5 (76) | 39 (60) | 42 (62) |
Reach ā Are services reaching the people that need them? | Services | 29.5 (76) | 3 (91) | 27.5 (67) |
Capacity for decision-making/change in legislation and its application; consumer and carer experiences of this. What information is provided about legislation? What support is provided, e.g. legal? | Legislation | 32.5 (75) | 15.5 (78) | 47.5 (59) |
To what extent do we follow human rights legislation on mental illness? | Legislation | 32.5 (75) | 24 (70) | 15.5 (76) |
Recovery and fulfilling potential | Other | 32.5 (75) | 15.5 (78) | 64.5 (50) |
Suicide: continuous care and support | Other | 32.5 (75) | 5 (89) | 7 (81) |
Is care traumatising? | Experiences of Care | 35 (74) | 9 (80) | 15.5 (76) |
Consumer and carer journey through service pathways ā What works and what doesnāt? What do clinicians think? | Services | 36.5 (73) | 34 (64) | 52 (57) |
Care coordination between mental health and physical health | Comorbidity and Physical Health | 36.5 (73) | 58 (50) | 1 (89) |
Consumer perspectives on use of labels ā Which terms are useful/helpful, which are not? | Language and Communication | 38.5 (72) | 69 (44) | 47.5 (59) |
Mental health in culturally and linguistically diverse populations | Other | 38.5 (72) | 58 (50) | 32 (65) |
Children of people with mental illness | Other | 40 (71) | 29.5 (67) | 38.5 (63) |
Awareness and role of GPs, e.g. engagement with carers, language and communication skills with consumers and carers | Services | 41.5 (70) | 62.5 (46) | 15.5 (76) |
Exhaustion and burnout of mental health professionals ā Impact on service support and delivery | Health Professionals | 41.5 (70) | 34 (64) | 32 (65) |
How many people with mental illness/disability are eligible for NDIS support? | National Disability Insurance Scheme | 44.5 (69) | 46.5 (56) | 60 (53) |
What forms of communication work for consumers and carers? (e.g. older people ā less technology familiarity; younger people ā social media, smart phones) | Language and Communication | 44.5 (69) | 84 (30) | 19 (75) |
Care planning ā What makes a good mental health plan? (e.g. individualised, including perspectives of consumers, carers and clinicians) | Treatment | 44.5 (69) | 34 (64) | 3.5 (84) |
Transparency of clinical management ā How does it respond and interact with consumers and carers? | Treatment | 44.5 (69) | 58 (50) | 3.5 (84) |
What are the experiences of and needs of people coming off medication? How are they being supported? | Medication | 47 (68) | 62.5 (45) | 9 (80) |
How mental health-aware are GPs? | Health Professionals | 49.5 (67) | 34 (64) | 38.5 (63) |
What is the role of a GP (perceived and actual) as part of the therapeutic alliance in care of mental health consumers? | Health Professionals | 49.5 (67) | 52.5 (55) | 26 (68) |
Stigma around borderline personality disorder | Stigma | 49.5 (67) | 81 (33) | 76 (39) |
Stigma as a barrier to consumer involvement | Stigma | 49.5 (67) | 46.5 (56) | 43 (61) |
Alternative treatments ā What are they, and how can they contribute to recovery? Holistic approaches, meditation, exercise | Treatment | 52.5 (66) | 76.5 (36) | 75 (40) |
Learned helplessness (experience with services) | Other | 52.5 (66) | 69 (44) | 55.5 (56) |
Consumers and carers ā Who is involved? | Consumer and Carer Involvement | 55 (64) | 15.5 (78) | 55.5 (56) |
Does the stigma in the mental health system worsen outcomes? | Stigma | 55 (64) | 29.5 (67) | 32 (65) |
What is the effect of caring? | Carers, Family and Friends | 55 (64) | 5 (89) | 15.5 (76) |
What sources of information do consumers and carers have faith in? | Language and Communication | 57 (63) | 81 (33) | 64.5 (50) |
How can medications be tailored to the individual? | Medication | 58.5 (62) | 62.5 (45) | 50.5 (58) |
Criteria for prescribing medications | Medication | 58.5 (62) | 52.5 (55) | 38.5 (63) |
What are clinician views on peer support? | Peer to Peer | 60.5 (61) | 81 (33) | 72.5 (44) |
Risk factors for mental illness | Other | 60.5 (61) | 46.5 (56) | 32 (65) |
How can we get mental health and other health professionals to work together more efficiently? | Health Professionals | 63.5 (61) | 20 (73) | 50.5 (58) |
Comorbidities and stigma | Stigma | 63.5 (61) | 69 (44) | 64.5 (50) |
What changes do people make in their own lives as a result of stigma? | Stigma | 63.5 (61) | 46.5 (56) | 55.5 (56) |
Who are the carers and what are they doing? | Carers, Family and Friends | 63.5 (61) | 24 (70) | 47.5 (59) |
Translation of clinical frameworks and guidelines into practice ā Why is there a disconnect? | Treatment | 66 (60) | 52.5 (55) | 38.5 (63) |
Carers and bereavement ā Are we offering enough counselling? Is it timely enough? Should it be offered in prisons? | Carers, Family and Friends | 67.5 (59) | 9 (80) | 32 (65) |
What is a peer? | Peer to Peer | 67.5 (59) | 81 (33) | 86 (19) |
What support is available when pain is a comorbid condition? How are people experiencing that? | Comorbidity and Physical Health | 70.5 (58) | 85 (22) | 64.5 (50) |
What is the evidence base linking mental illness with alcohol and other drugs? | Comorbidity and Physical Health | 70.5 (58) | 29.5 (67) | 64.5 (50) |
What kind of support would carers like? | Carers, Family and Friends | 70.5 (58) | 1.5 (100) | 21.5 (71) |
Is there such a thing as carer recovery? | Carers, Family and Friends | 70.5 (58) | 15.5 (78) | 2 (88) |
How do current protocols support consumer and carer journeys to recovery? | Treatment | 73.5 (57) | 24 (70) | 69 (47) |
How are Partners in Recovery, Personal Helpers and Mentors, support and clinical management working together? | Services | 73.5 (57) | 76.5 (36) | 74 (43) |
Bullying | Other | 75 (56) | 81 (33) | 72.5 (44) |
Trial of primary healthcare nurse within mental health teams ā Does it improve physical health outcomes? | Comorbidity and Physical Health | 76.5 (55) | 74 (40) | 84 (28) |
Analysis of stigma according to disorder | Stigma | 76.5 (55) | 69 (44) | 47.5 (59) |
Bereavement | Other | 78 (53) | 69 (44) | 82 (31) |
How is āprivacyā interpreted by health professionals, and does it differ from consumer and carer interpretations? | Health Professionals | 79.5 (52) | 52.5 (55) | 81 (32) |
Stereotype formation | Stigma | 79.5 (52) | 58 (50) | 79.5 (33) |
Insurance | Other | 81 (50) | 29.5 (67) | 85 (25) |
Gender-specific effects of medication | Medication | 82 (47) | 87 (18) | 78 (35) |
Effects of drug and alcohol use early in life | Comorbidity and Physical Health | 83 (39) | 69 (44) | 72.5 (44) |
Electroconvulsive therapy ā What information is given, does it follow best practice, what are consumersā experiences? | Treatment | 84.5 (31) | 86 (20) | 83 (30) |
Smoking cessation | Other | 85.5 (31) | 69 (44) | 87 (7) |
Do the public and private sectors work together? Consumer and carer experiences | Services | 86 (30) | 76.5 (36) | 79.5 (33) |
Pet therapy | Treatment | 87 (26) | 76.5 (36) | 64.5 (50) |