Table 3 Data sources
Data source (eligible participants) | Description of members | Justification for inclusion | Topics of interest discussed during data collection |
|---|---|---|---|
(1) H&S team | H&S staff who collaborated on this research and worked directly with the MCA councils | To gain an understanding of the organization’s experiences of leading and managing the councils | -MCA council management—MCA council support -Interactions with the councils and members -Lesson learned from this mechanism of engagement |
(2) MCA councils | Researchers, clinician scientists, health systems leaders and community members, including PWLE | To gain an understanding of participating on the MCA councils | -MCA council functioning -Members’ level of engagement -Knowledge sharing -Knowledge construction -MCA council support provided by H&S -Challenges -Outcomes |
(3) Council of MCA co-chairs | Each MCA council was led by two co-chairs, a clinician scientist or researcher and a community member (including PWLE), who were also a part of the council of co-chairs, which operated like a community of practice. Co-chairs learned from each other about challenges and innovations emerging from the individual councils they led | To gain the perspective of the individuals leading the MCA councils, and understand how knowledge sharing occurred within and across councils | -Evolution of the MCA councils -Challenges and opportunities -Opportunities for improvement -Outcomes -Lessons learned |
(4) Key informants | Key informants internal to the H&S, and affiliates, who were identified by the H&S team as having important and valuable perspectives on the impact of the MCA councils | To gain an external perspective of the value and impacts of the MCA councils to the H&S and beyond | -Their experiences with the MCA councils or council-related activities -Anticipated and unanticipated benefits and consequences -General observations |
(5) H&S (and MCA council-specific) documents | Documents related to the creation and maintenance of the MCA councils, which the H&S team identified as important and relevant to our study | To provide contextual and historical information within which to frame the case | Questions we asked ourselves when going through these documents: -Purpose of MCA councils -Supporting the MCA councils -Planning activities -Outcomes |