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Table 9 About management of relationships across funding institutions by case

From: Governance of health research funding institutions: an integrated conceptual framework and actionable functions of governance

Country, institution

Actions related to management of relationships

Canada, Canadian Institutes of Health Research (CIHR)

• Internal relationships with the scientific directors of institutes that have a seat at the CIHR scientific institution

• University delegates to represent CIHR on campus

• Interaction with Parliament in 2005, with Day on the Hill

• Speak with one centralised voice for CIHR and its institutes

• New initiatives to connect with other institutions and institutions (Natural Sciences and Engineering Research Council of Canada and Social Sciences and Humanities Research Council of Canada)

• Declaration of conflict of interest on governing institution board meetings

Australia, National Health and Medical Research Agency (NHMRC)

• Involvement of funded researchers in research translation faculty to advise NHMRC on knowledge translation

United States, National Institutes of Health (NIH)

• NIH and each institute with a public liaison office

• Council of Public Representatives to advise NIH director on public participation, bringing public voice and sending messages to public

• Seeking out partnerships across institutions and with private actors to enhance the impact and translation of findings

• Pioneering a proactive participation model with the inclusion of volunteers at all stages of the research process

Singapore, National Medical Research Agency (NMRC)

• Public engagement programme, website, education material, public forum to inform on clinical research activities and present the need for active participation on clinical research and trials

Sweden, Swedish Research Agency (SRC) and Scientific Council for Medicine (SCM)

• Advise government on research policy

• Collaboration with a book fair where universities and higher education institutions interact with a broad audience

• Strengthening community (local teachers/schools); support of the EU initiative Researchers’ Night

• Broad information programme for public and decision-makers

• Influence on research policy agenda by publishing on research policy in Sweden

• Responsibilities for EU programme Science in Society

• Mission to advise the government

• Web service to connect journalists and experts

• Implication in EU framework (viewpoint on the design of the call for application, ERA-NET programme, promotion of pan-European calls for proposals)

• Development of collaboration with Nordic countries on research infrastructure

• Hosting of an international conference on research communication in 2008

• Annual meeting for researchers and politicians

• Breakfast seminars at the parliament with researchers

United Kingdom, National Institute of Health Research (NIHR)

• NIHR network to connect researchers and experts in specific domains (share good practice, study feasibility, etc.)

• Public involvement in commissioning and reviewing of proposals by coordinating centres

• Facilitation of industry engagement with office for clinical research infrastructure

• Connecting with a newspaper to publish clinical trials and number of patients recruited

• Secretary of State for Health’s visit to a research centre

• Biannual conference on public involvement with public/researcher/organisation

• Showcase of R&D work opened to the public

• Research output assessment tools to capture progress of commissioned research

• Launch of a press office in2017

• Initiative INVOLVE to promote and advance public engagement in research

The Netherlands, The Netherlands Organisation for Health Research and Development (ZonMw)

• Collaboration with the EU on different projects

• Collaboration at international level on specific programmes (i.e. Heads of International Research Organisations)

• Practice-oriented design and assessment of research proposals with patients, city councils, etc.