Table 1 Participant roles: combined roles

Health professional—hospital-based

11

24

Academic—medical/nursing/midwifery

5

11

Researcher (including PhD students)

5

11

Health professional—community/primary care

4

9

Parent advocate/bereaved parent

3

7

Parent advocate/bereaved parent; support group representative

3

7

Other [Advocate for quality end-of-life care; Librarian; Marketing professional]

3

7

Academic—medical/nursing/midwifery; health professional—hospital-based

2

4

Health professional—hospital-based; researcher (including PhD students)

2

4

Journalist / media representative

2

4

Academic—social sciences; health professional—community/primary care; parent advocate/bereaved parent; support group representative; researcher (including PhD students)

1

2

Academic—social sciences; health professional—community/primary care; researcher (including PhD students)

1

2

Decision maker (a person with power to influence or determine policies and practices at local, regional, national or international level)

1

2

Decision maker (a person with power to influence or determine policies and practices at local, regional, national or international level); health professional—hospital-based

1

2

Journalist/media representative; parent advocate/bereaved parent

1

2

Medical student

1

2

Total

46

100