Table 1 Sociodemographic characteristics of study participants (n = 29)^a

Age, years

63.8 (5.3)^b

43 (11.3)^b,c

Gender

13 (93%) Women

1 (7%) Man

14 (93%) Women

1 (7%) Prefer not to say

Ethnicity (self-identified categories)

8 (58%) White/Caucasian

2 (14%) European Canadian

1 (7%) Black Canadian

1 (7%) Canadian

1 (7%) Ashkenazi Jewish

1 (7%) Afro-Caribbean

5 (32%) White/Caucasian

3 (20%) European

2 (13%) French Canadian

1 (7%) Chinese Canadian

1 (7%) Japanese Korean

1 (7%) Filipino

1 (7%) South Asian

1 (7%) Prefer not to say

Place of residence (province/territory)

7 (50%) Ontario

2 (14%) Quebec

2 (14%) Nova Scotia

1 (7%) British Columbia

1 (7%) Alberta

1 (7%) Saskatchewan

7 (46%) Ontario

3 (20%) Quebec

2 (13%) British Columbia

1 (7%) Alberta

1 (7%) New Brunswick

1 (7%) Newfoundland

Highest level of education completed

1 (7%) High school

5 (35%) Bachelor’s degree

8 (58%) Master’s degree

N/A

Primary community represented

6 (43%) Patient

1 (7%) Caregiver

7 (50%) Both patient and caregiver

N/A

Position

N/A

7 (46%) Professor (assistant/associate/full)

2 (13%) Research centre director

2 (13%) PhD student

1 (7%) Research program manager

1 (7%) Engagement manager

1 (7%) Research associate

1 (7%) Postdoctoral fellow

Years of experience being engaged/engaging patient partners

6.5 (3.3)^b

6.8 (3.8)^b

Years of experience being engaged/engaging patient partners in SPOR-funded opportunities

4.4 (1.8)^b

4.7 (2.2)^b

Types of SPOR-funded studies and/or SPOR-funded opportunities worked on

13 (93%) Research study

5 (36%) SPOR network

1 (7%) SPOR SUPPORT unit

2 (14%) SPOR

14 (93%) Research study

4 (27%) SPOR network

3 (20%) SPOR SUPPORT unit